HUNTINGTON'S DISEASE SOCIETY OF AMERICA CENTER OF EXCELLENCE AT THE UNIVERSITY OF ROCHESTER | HUNTINGTON'S DISEASE SOCIETY OF AMERICA CENTER OF EXCELLENCE AT THE UNIVERSITY OF ROCHESTER

919 Westfall Road, Bldg C, Suite 100, Rochester, NY 14618

Eligibility

None.

Hours

Support group meeting varies monthly.

(800) 345-4372

Voice·

Toll-Free | National headquarters

(585) 341-7519

Voice

Application process

Call ahead before attending your first group meeting. Call Amy Chesire at 585 341-7519 or email [email protected].

Fees

Support group: no fees. Huntington's Disease Family Center, University of Rochester: Medicaid. Medicare. Third party insurance. No one refused service based on inability to pay.

Service area

Cayuga County, New York Ontario County, New York Livingston County, New York Wayne County, New York Seneca County, New York Monroe County, New York

Offers supportive services for persons with Huntington's Disease and their caregivers. Mutual support group for those with Huntington's Disease and those at risk. Dissemination of information on Huntington's Disease. Care and education to all affected by Huntington's Disease through the Huntington's Disease Family Center. Education of professionals towards a better understanding, treatment and care of Huntington's Disease. Clinical research and drug trial observations.

Last assured

07/15/2024

What's Here

Disease/Disability Information Special Libraries Caregiver/Care Receiver Support Groups Charities/Grantmaking Organizations Health/Disability Related Support Groups Public Awareness/Education

Providing organization

HUNTINGTON'S DISEASE SOCIETY OF AMERICA CENTER OF EXCELLENCE AT THE UNIVERSITY OF ROCHESTER

Huntington's Disease Society of America provides outpatient clinical care, support, education and clinical trials for patients and families affected by Huntington's disease.