NATIONAL TAY-SACHS AND ALLIED DISEASES ASSOCIATION | NATIONAL TAY-SACHS AND ALLIED DISEASES ASSOCIATION
Resource Name:NATIONAL TAY-SACHS AND ALLIED DISEASES ASSOCIATION | NATIONAL TAY-SACHS AND ALLIED DISEASES ASSOCIATION
address
2001 Beacon Street, Suite 204, Boston, MA
Eligibility
Agency requests client call for details
Hours
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888-354-4884
Fax
·Fax
617-277-4463
Voice
·Main
Website
https://www.ntsad.org/Application process
Agency requests client call for details
Fees
Agency requests client call for details
Service area
NY
Leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. NTSAD is one of the oldest patient advocacy groups in the country, focusing on funding research, supporting over 700 families and individuals worldwide, and raising awareness to prevent disease.
Last assured
09/17/2021
Providing organization
NATIONAL TAY-SACHS AND ALLIED DISEASES ASSOCIATION
Provides educational literature on Tay-Sachs and related genetic diseases to general public and health professionals. Promotes genetic screening programs and appropriate local legislation, supports parent outreach and on going parent support groups, provides referrals for medical and genetic support to families of affected children. Supports genetic research.