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HUNTINGTON'S DISEASE SOCIETY OF AMERICA CENTER OF EXCELLENCE AT THE UNIVERSITY OF ROCHESTER | HUNTINGTON'S DISEASE SOCIETY OF AMERICA CENTER OF EXCELLENCE AT THE UNIVERSITY OF ROCHESTER
* Offers supportive services for persons with Huntington's Disease and their caregivers. Mutual support group for those with Huntington's Disease and those at risk. Dissemination of information on Huntington's Disease. Care and education to all affected by Huntington's Disease through the Huntington's Disease Family Center. Education of professionals towards a better understanding, treatment and care of Huntington's Disease. Clinical research and drug trial observations.
* Offers supportive services for persons with Huntington's Disease and their caregivers. Mutual support group for those with Huntington's Disease and those at risk. Dissemination of information on Huntington's Disease. Care and education to all affected by Huntington's Disease through the Huntington's Disease Family Center. Education of professionals towards a better understanding, treatment and care of Huntington's Disease. Clinical research and drug trial observations.
What's Here
Disease/Disability Information
Health/Disability Related Support Groups
Public Awareness/Education
Caregiver/Care Receiver Support Groups
Special Libraries
Charities/Grantmaking Organizations
EDUCATION SERVICES | AMERICAN HEART ASSOCIATION-ROCHESTER DIVISION
* Provides information on prevention, diagnosis, and treatment of heart diseases and stroke. Educational programs - including CPR and AED Training. Cardiovascular risk factor prevention targeted to schools and worksites. Support of local research.
* Provides information on prevention, diagnosis, and treatment of heart diseases and stroke. Educational programs - including CPR and AED Training. Cardiovascular risk factor prevention targeted to schools and worksites. Support of local research.
What's Here
CPR Instruction
Health/Disability Related Support Groups
Automated External Defibrillator Training
Disease/Disability Information
DISABILITY INFORMATION AND SUPPORT SERVICES | MUSCULAR DYSTROPHY ASSOCIATION INC
* Provides comprehensive health care services and support to MDA families.
* Provides comprehensive health care services and support to MDA families.
What's Here
Health/Disability Related Support Groups
Disease/Disability Information
LIFETIME ASSISTANCE INC. | LIFETIME ASSISTANCE INC.
* Offers day habilitation services and Community Habilitation. * Offers a full-range of residential services.* Provides vocational assessment and transition planning, employment services, job search and placement.* Provides Fiscal Intermediary and Broker Services.* Provides intensive support and training to parents with developmental disabilities and their children. Training includes parenting education, social activities, recreation and other life enriching experiences.
* Offers day habilitation services and Community Habilitation. * Offers a full-range of residential services.* Provides vocational assessment and transition planning, employment services, job search and placement.* Provides Fiscal Intermediary and Broker Services.* Provides intensive support and training to parents with developmental disabilities and their children. Training includes parenting education, social activities, recreation and other life enriching experiences.
What's Here
Disease/Disability Information
Developmental Disabilities Day Habilitation Programs
Pediatric Developmental Assessment
Adult In Home Respite Care
Life Skills Education
Adult Residential Care Homes
Recreational Activities/Sports
Disability Related Center Based Employment
DIABETES PREVENTION PROGRAM | CAYUGA COMMUNITY HEALTH NETWORK
* Provides an evidence-based lifestyle change program to reduce or delay type 2 diabetes for people who are prediabetic or at risk of type 2 diabetes.
* Provides an evidence-based lifestyle change program to reduce or delay type 2 diabetes for people who are prediabetic or at risk of type 2 diabetes.
What's Here
Chronic Disease Self Management Programs
Disease/Disability Information
Public Awareness/Education
Health/Disability Related Support Groups
EDUCATION SERVICES | AMERICAN LIVER FOUNDATION
* Offers educational programs for health care professionals and interested lay-persons on liver disease.* Organizes and sponsors support groups and informational programs.* Provides fundraisers and support for research.* Offers support and promotion of Gift of Life Organ Donor Program.* Offers liver wellness and drug awareness programs for primary school-aged children.
* Offers educational programs for health care professionals and interested lay-persons on liver disease.* Organizes and sponsors support groups and informational programs.* Provides fundraisers and support for research.* Offers support and promotion of Gift of Life Organ Donor Program.* Offers liver wellness and drug awareness programs for primary school-aged children.
What's Here
Special Libraries
Public Awareness/Education
Charities/Grantmaking Organizations
Disease/Disability Information
Wellness Programs
EPILEPSY EDUCATION SERVICES | EMPOWERING PEOPLE'S INDEPENDENCE (EPI)
Provides education on seizure recognition and epilepsy first aid to schools, agencies, and organizations.
Provides education on seizure recognition and epilepsy first aid to schools, agencies, and organizations.
What's Here
Subject Specific Public Awareness/Education
Disease/Disability Information
ENCORE PLUS | YWCA OF WHITE PLAINS AND CENTRAL WESTCHESTER
Offers education and referrals for early detection of breast and cervical cancer.
Offers education and referrals for early detection of breast and cervical cancer.
What's Here
Disease / Disability Information
BREAST CANCER ADVOCACY | ADELPHI NY STATEWIDE BREAST CANCER HOTLINE AND SUPPORT PROGRAM
Advocates for increased funding for breast cancer research, adequate insurance coverage for patients, quality control of treatment, environmental concerns and improved access to proper care.
Advocates for increased funding for breast cancer research, adequate insurance coverage for patients, quality control of treatment, environmental concerns and improved access to proper care.
What's Here
Health / Disability Related Support Groups
Disease / Disability Information
HUNTINGTON'S DISEASE RESOURCE INFORMATION | HUNTINGTON'S DISEASE SOCIETY OF AMERICA
Offers individuals with Huntington's, and their families, support and information about possible community resources, research, and latest treatments. Also provides a variety of informational modes regarding issues dealing with Huntington's, including online resources.
Offers individuals with Huntington's, and their families, support and information about possible community resources, research, and latest treatments. Also provides a variety of informational modes regarding issues dealing with Huntington's, including online resources.
What's Here
Internet Information Resources
Specialized Information and Referral
Disease / Disability Information
TICK-BORNE EDUCATION | WESTCHESTER COUNTY DEPARTMENT OF HEALTH (WCDOH) - YONKERS
Provides online written materials on tick-borne diseases.
Provides online written materials on tick-borne diseases.
What's Here
Disease / Disability Information
Alzheimer's Disease Program | Alzheimer's Association - Rochester and Finger Lakes Region
Offers information and referral, education, care consultation and support groups to caregivers of individuals with Alzheimer's disease.
Offers information and referral, education, care consultation and support groups to caregivers of individuals with Alzheimer's disease.
What's Here
Disease / Disability Information
Alzheimer's Disease
System Advocacy
Disability Information and Support Services | New York State Office for People with Developmental Disabilities (OPWDD) (Admin Site)
Provides information and referral, family reimbursements, respite, advocacy, counseling, crisis intervention, home care, recreation, training, and transportation planning services for individuals with developmental disabilities.
Provides information and referral, family reimbursements, respite, advocacy, counseling, crisis intervention, home care, recreation, training, and transportation planning services for individuals with developmental disabilities.
What's Here
Disease / Disability Information
Developmental Disabilities
Protection and Advocacy for Individuals With Disabilities
DEAF/HEARING LOSS RESOURCE INFORMATION | HEARING LOSS ASSOCIATION OF AMERICA - WESTCHESTER CHAPTER
Offers information on available services, activities, support, and advocacy for those who are deaf, hard of hearing and their families. Also provides a quarterly newsletter, which aims towards the need of individuals who are deaf or hard of hearing, and their families. Anyone is welcome to send in articles or information for publication.
Offers information on available services, activities, support, and advocacy for those who are deaf, hard of hearing and their families. Also provides a quarterly newsletter, which aims towards the need of individuals who are deaf or hard of hearing, and their families. Anyone is welcome to send in articles or information for publication.
What's Here
Newsletters
Disease / Disability Information
BREAST AND GYNECOLOGICAL CANCER EDUCATION PROGRAMS | SUPPORT CONNECTION
Offers educational programs and lectures that focus on cancer diagnosis, treatment and recovery. These programs are open to cancer survivors, their family, friends and the general public.
Offers educational programs and lectures that focus on cancer diagnosis, treatment and recovery. These programs are open to cancer survivors, their family, friends and the general public.
What's Here
Disease / Disability Information
CHILDREN WITH SPECIAL HEALTH CARE NEEDS PROGRAM | SUFFOLK COUNTY DEPARTMENT OF HEALTH SERVICES - DIVISION OF SERVICES FOR CHILDREN WITH SPECIAL NEEDS
Performs various functions to assure that children up to the age of 21 with certain disabilities and/or chronic health conditions receive quality care while limiting the financial impact on families. Service coordinators provide case management to empower families to meet challenges of caring for a child with special health care needs and assist families in accessing educational services, as well as community resources. Call for detailed information.
Performs various functions to assure that children up to the age of 21 with certain disabilities and/or chronic health conditions receive quality care while limiting the financial impact on families. Service coordinators provide case management to empower families to meet challenges of caring for a child with special health care needs and assist families in accessing educational services, as well as community resources. Call for detailed information.
What's Here
Disabilities and Health Conditions
Disabilities Issues
Disease / Disability Information
Health Screening / Diagnostic Services
Early Intervention for Children With Disabilities / Delays
ADVOCACY AND REFERRAL - ALZHEIMER'S ASSOCIATION | ALZHEIMER'S ASSOCIATION, CENTRAL NEW YORK CHAPTER
Advocates represent Association on Alzheimer's-related issues to federal, state, and local government and to health care and long-term care providers. The benefit is to increase federal research funding, growth in state-supported services, and improvement in quality of care for those in residential facilities.
Advocates represent Association on Alzheimer's-related issues to federal, state, and local government and to health care and long-term care providers. The benefit is to increase federal research funding, growth in state-supported services, and improvement in quality of care for those in residential facilities.
What's Here
Disease/Disability Information
Subject Specific Public Awareness/Education
Issue Advocacy
ALZHEIMER'S ASSOCIATION ROCHESTER/FINGER LAKES CHAPTER | ALZHEIMER'S ASSOCIATION ROCHESTER/FINGER LAKES CHAPTER
* Offers a 24 hour Helpline that provides reliable information and support to people with memory loss, as well as, caregivers, health care professionals, and the public.* Offers free community education courses on Alzheimer's disease. * Provides social activities to encourage individuals with Alzheimer's disease to continue engaging in the activities they enjoy. * Offers care consultation that provides needs assessment, planning and problem solving, plan development and support.* Provides education regarding prevention of wandering.
* Offers a 24 hour Helpline that provides reliable information and support to people with memory loss, as well as, caregivers, health care professionals, and the public.* Offers free community education courses on Alzheimer's disease. * Provides social activities to encourage individuals with Alzheimer's disease to continue engaging in the activities they enjoy. * Offers care consultation that provides needs assessment, planning and problem solving, plan development and support.* Provides education regarding prevention of wandering.
What's Here
Emergency Alert
Missing Persons Location Assistance
Disease/Disability Information
Public Awareness/Education
Dementia Management
Medical Information Services
Adult In Home Respite Care
Patient Rights Assistance
ALZHEIMER'S ASSOCIATION, CENTRAL NEW YORK CHAPTER | ALZHEIMER'S ASSOCIATION, CENTRAL NEW YORK CHAPTER
supports research for the prevention, cure and treatment of Alzheimer's disease educates the public about Alzheimer's advocates for government assistance provides support and assistance to Alzheimer's patients and their families sponsors support groups, public education meetings, professional training, caregiver trainings and community presentations makes available a quarterly newsletter, daily e-newsletter, books, brochures, fact sheets and videosCortland County Caregiver Support GroupThird Wednesday, 12:30PM, Walden Place, 839 Bennie Road, CortlandPlease call to register 315-472-4201 ext 227Tompkins County Caregiver Support GroupFirst Wednesday, 5:30PM, Lifelong, 119 W Court Street, Ithaca
supports research for the prevention, cure and treatment of Alzheimer's disease educates the public about Alzheimer's advocates for government assistance provides support and assistance to Alzheimer's patients and their families sponsors support groups, public education meetings, professional training, caregiver trainings and community presentations makes available a quarterly newsletter, daily e-newsletter, books, brochures, fact sheets and videosCortland County Caregiver Support GroupThird Wednesday, 12:30PM, Walden Place, 839 Bennie Road, CortlandPlease call to register 315-472-4201 ext 227Tompkins County Caregiver Support GroupFirst Wednesday, 5:30PM, Lifelong, 119 W Court Street, Ithaca
What's Here
Caregiver/Care Receiver Support Groups
Disease/Disability Information
LIVING WELL WITH A CHRONIC CONDITION | HERKIMER COUNTY HEALTHNET INC.
* Provides a Chronic Disease Self-Management (CDSM) program Living Well with a Chronic Condition, a free interactive 6-week workshop series that meets once a week to help people with chronic conditions such as diabetes, breathing problems, depression, anxiety, heart conditions, and arthritis. Sessions meet for 2.5 hours in local community settings across the region. Participants will:
- Gain support from peers that have similar conditions
- Identify stressors and learn new coping skills
- Learn to talk to family, friends, and health care professionals about their chronic conditions
- Find practical ways to deal with pain and fatigue
- Discuss ways to maintain and improve strength, flexibility, and endurance
- Set goals and make a step-by-step plan to improve health and life
- Manage symptoms
- Communicate effectively with doctors and other healthcare professionals
- Ease frustration
- Fight fatigue and pain
- Eat healthier and read nutrition labels
- Keep blood sugar in check
- Make daily tasks easier
- Support from others with chronic pain
- Tools to manage symptoms
- Goal setting and problem solving
- Safe exercise information
- Way to cope with difficult emotions
- Ways to talk to doctors, family and friends about your needs
* Provides a Chronic Disease Self-Management (CDSM) program Living Well with a Chronic Condition, a free interactive 6-week workshop series that meets once a week to help people with chronic conditions such as diabetes, breathing problems, depression, anxiety, heart conditions, and arthritis. Sessions meet for 2.5 hours in local community settings across the region. Participants will:
- Gain support from peers that have similar conditions
- Identify stressors and learn new coping skills
- Learn to talk to family, friends, and health care professionals about their chronic conditions
- Find practical ways to deal with pain and fatigue
- Discuss ways to maintain and improve strength, flexibility, and endurance
- Set goals and make a step-by-step plan to improve health and life
- Manage symptoms
- Communicate effectively with doctors and other healthcare professionals
- Ease frustration
- Fight fatigue and pain
- Eat healthier and read nutrition labels
- Keep blood sugar in check
- Make daily tasks easier
- Support from others with chronic pain
- Tools to manage symptoms
- Goal setting and problem solving
- Safe exercise information
- Way to cope with difficult emotions
- Ways to talk to doctors, family and friends about your needs
What's Here
Chronic Disease Self Management Programs
Disease/Disability Information
COMMUNITY AND CONSUMER SERVICES | AMERICAN DIABETES ASSOCIATION
* Provides advocacy, research, and education about diabetes to professionals and the general public.
* Offers fundraising events.
* Offers fundraising events.
* Provides advocacy, research, and education about diabetes to professionals and the general public.
* Offers fundraising events.
* Offers fundraising events.
What's Here
Public Awareness/Education
Special Libraries
Disease/Disability Information
LIGHTHOUSE GUILD | LIGHTHOUSE GUILD
Dedicated to preserving vision and to providing crucially needed vision health care services to help people of all ages overcome the challenges of vision loss, through clinical services, education, research, and advocacy enabling people with low vision and blindness enjoy safe, independent and productive lives. Call or visit website for more information.
Dedicated to preserving vision and to providing crucially needed vision health care services to help people of all ages overcome the challenges of vision loss, through clinical services, education, research, and advocacy enabling people with low vision and blindness enjoy safe, independent and productive lives. Call or visit website for more information.
What's Here
Case / Care Management
Independent Living Skills Instruction
Disease / Disability Information
Visual / Reading Aids
Disability Associations
SUFFOLK REGION | AMERICAN CANCER SOCIETY
Serves as local cancer education resource to cancer patients, their families, medical and allied health professionals and the general public. Provides funds for research. The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem through research, education, advocacy and service.
Serves as local cancer education resource to cancer patients, their families, medical and allied health professionals and the general public. Provides funds for research. The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem through research, education, advocacy and service.
What's Here
Disease / Disability Information
Crisis Intervention Hotlines / Helplines
LYME DISEASE PROGRAM | ULSTER COUNTY DEPARTMENT OF HEALTH
Monitors Lyme disease cases, identifies ticks, and provides Lyme disease education.
Monitors Lyme disease cases, identifies ticks, and provides Lyme disease education.
What's Here
Disease / Disability Information
Pest Control Services
FREE COMMUNITY LECTURES | Good Samaritan University Hospital
Offers free lectures on health topics to community members with the objective of educating, raising awareness, improving understanding of risk factors, diagnostic procedures and treatment. Topics may include cancer, diabetes, nutrition, stroke, cardiology and glaucoma. Topics are based on requests from the community, hospital physicians, staff and national health observances and recognition days. Call for more information.
Offers free lectures on health topics to community members with the objective of educating, raising awareness, improving understanding of risk factors, diagnostic procedures and treatment. Topics may include cancer, diabetes, nutrition, stroke, cardiology and glaucoma. Topics are based on requests from the community, hospital physicians, staff and national health observances and recognition days. Call for more information.
What's Here
Health Literacy Programs
Nutrition Education
Disease / Disability Information
Workshops / Symposiums
Community Wellness Programs
Health Education
