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LONG ISLAND OFFICE | LONG ISLAND OFFICE

Provides information and referral to people with cystic fibrosis and raises money for cystic fibrosis research.

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JEWISH GENETIC DISEASE PROGRAM | JEWISH GENETIC DISEASE PROGRAM

Certain inherited diseases occur more frequently in a given ethnic or racial group than in the general population. The Jewish Genetic Disease Program provides education, genetic screening, genetic counseling and clinical services for individuals or families commonly affected by these diseases. Fanconi Anemia (Type C), Tay-Sachs Disease, Canavan Diseases, Niemann-Pick Disease, Bloom Syndrome,Mucolipodosis (Type lV), Gaucher Disease (Type l), Familial Dysautonomia and Cystic Fibrosis are among the many genetic diseases that have been tested.

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CYSTIC FIBROSIS CENTER | CYSTIC FIBROSIS CENTER

Provides comprehensive care to cystic fibrosis patients from infancy to adulthood. Offers a holistic and family focused approach to patient care with an emphasis on promoting normal physical and emotional growth and development. Goals include slowing the progression of the disease, prevention and treatment of complications and helping the patients integrate the disease and strenuous medical treatments into daily life. Provides a home care program. Parent support groups are available on a as needed basis.

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