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55 Kenosia Avenue, Danbury, CT 06813-1968
Acts as a clearinghouse and referral service for information on rare diseases. Maintains a comprehensive rare disease database, which provides families with information on over 1,100 rare disorders. Its networking program links families with other families who are afflicted with similar disorders. Accumulates and disseminates information about orphan drugs and devices, making known their availability. Advocates the needs of people with rare disorders. Provides disease specific medical reports written in lay language. Also offers a Medication Assistance Program for specific drugs and a medical equipment exchange program. Publishes Orphan Disease Update and Resource Guide . Call for more information.
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211 Hudsson Valley / ADK
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16 Main Street, Huntington, NY 11743
Angels for Warriors connects veterans with the resources they have earned from their service to our country. We assist Veteran's transition to permanent housing, register them for veteran benefits and advocate on the veteran's behalf for medical care.
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211 Hudsson Valley / ADK
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377 Oak Street, 5th Floor, Garden City, NY 11530
Newcomers Resource Center an FCA program that will provide immigrants and refugees with a broad array of case management short term counseling, family support, child care and easy access for legal help with critical immigrant concerns, both English and Spanish.
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211 Hudsson Valley / ADK
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136 E Service Rd Ste 401, Binghamton, NY 13905
Free literature and video presentations available.
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211 Susquehanna UW Vestal
5 Washington Terrace, Newburgh, NY 12550
Independent Living is a member of the Statewide Systems Advocacy Network, a group of eighteen independent living centers throughout New York State which collaborates with other disability organizations to ensure that legislation affecting people with disabilities is introduced, passed by the Legislature and signed into law by the Governor.
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211 Hudsson Valley / ADK
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19 Eaton Ave, Norwich, NY 13815
Answers questions; provides information; and offers support on health and health insurance post enrollment-related issues so that individuals and families get health care they need.
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211 Susquehanna UW Vestal
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34570 Nys Rt 10 Ste 2, Hamden, NY 13782
Brings together health care and health care related organizations to share information, conduct assessments, develop plans and fund projects to address health education and awareness.
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211 Susquehanna UW Vestal
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421 Montgomery Street, Civic Center, 9th Floor, Syracuse, NY 13202
Provides care coordination for children and youth with special health care needs. The program connects families with community resources, offers referrals and advocacy, and assists with navigating systems of care.
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211 Central New York
1000 Elmwood Ave Ste 900, Rochester, NY 14620
Provides educational and informational programs on MS. Also provides financial assistance, support groups, MS Service Day, scholarships, care management and other support services.
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211 Susquehanna UW Vestal
7 Pearl Street, Malone, NY 12953
Empower individuals and families so that they can make the right decisions concerning issues effecting their life by connecting and accompanying individuals to service providers. They offer one-on-one mutual support, benefits advice, wellness recovery action planning, enabling individuals to make informed decisions on their own, assists in finding community resources. Help in understanding information regarding State Education Laws, mental health laws, and school district policies to be sure that families are being treated in accordance with the law and/or policy.
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211 Hudsson Valley / ADK
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1383 Veterans Memorial Highway, Suite 26, Hauppauge, NY 11788
Promotes the benefits of walking via "mock prescriptions" to encourage people to walk, coordinates with local towns and villages to make streets safer for walking, offers a database listing year-round walking events and trails, and provides and online portal for members to track their progress.
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211 Hudsson Valley / ADK
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388 Broadway, 4th Floor, Albany, NY 12208
Seeks to promote and enhance the quality, accessibility, and availability of home care. Interfaces with state and federal lawmaking bodies, regulatory agencies, and fiscal intermediaries to interpret, challenge, or support regulations that affect home health care and services. Actively involved in influential councils, committees, and task forces. Membership totals over 500 agencies, organizations, and associate members. Website offers search capability to locate providers throughout New York State.
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211 Hudsson Valley / ADK
997 Glen Cove Avenue, Suite 5, Glen Head, NY 11545
Dedicated to helping children and adults with disorders of growth and growth hormone through research, education, support, and advocacy. HGF provides: research support, family education and advocacy, public outreach & awareness, support of parents of children with growth disorders, support of adults with growth hormone deficiency, training for growth specialists and education for healthcare providers.
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211 Hudsson Valley / ADK
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30 Industrial Drive, Middletown, NY 10941
Independent Living is a member of the Statewide Systems Advocacy Network, a group of eighteen independent living centers throughout New York State which collaborates with other disability organizations to ensure that legislation affecting people with disabilities is introduced, passed by the Legislature and signed into law by the Governor.
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211 Hudsson Valley / ADK
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14 Pelton Street, East Wing, Monticello, NY 12701
Independent Living is a member of the Statewide Systems Advocacy Network, a group of eighteen independent living centers throughout New York State which collaborates with other disability organizations to ensure that legislation affecting people with disabilities is introduced, passed by the Legislature and signed into law by the Governor.
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211 Hudsson Valley / ADK
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7 Kenosia Ave, Danbury, CT 06810
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211 Western New York
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3629 Five Mile Road, Allegany, NY 14706
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211 Western New York
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211 Western New York
505 8th Avenue, Suite 902, New York, NY 10018
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211 Western New York
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1350 Maple Road, Unit 7, Williamsville, NY 14221
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211 Western New York
5 Pine West Plaza, Suite 506, Albany, NY 12205
- Provides a linkage of families and individuals who have a brain injury, which includes: Family Advocacy: Support and counseling, connecting family with funding resources, housing, transportation, and service providers. Educational Advocacy: Support and counseling for educational needs after a brain injury, helping family with IEP process, and attendance at CSE meetings. Outreach: Connection with service providers, hospitals, schools, etc. to increase awareness of BIANYS, traumatic and acquired brain injury, and increasing FACTS enrollment. Prevention: Connection with service providers, hospitals, schools, etc. to teach injury prevention and safety. Training: Connection with service providers, hospitals, schools, etc. to conducts trainings about traumatic and acquired brain injury.
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211 Life Line Finger Lakes
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3600 American Boulevard West, Eagan, MN 55431
Support services via website to all health care patients with conditions of Alzheimer's, epilepsy, stroke, brain trauma, mental illnesses, etc. in building websites to share health updates, receive messages of encouragement and coordinate everyday help.
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211 Hudsson Valley / ADK
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21 Perry Street, Port Jefferson, NY 11777
Offers individualized case management provided by a team of experienced and compassionate social workers, Child-Life specialists, art Therapists specialists for children with a life-threatening illness and their families. Services include emotional support, palliative/bereavement support, financial assistance, and advocacy support.
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211 Hudsson Valley / ADK
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200 Pantigo Place, Suite M, East Hampton, NY 11937
Provides improved access to quality healthcare services in the town of East Hampton. Offers primary healthcare to uninsured through programs at the East Hampton Healthcare Facility. Funds programs to support healthcare access and public health improvement. Provides grant funds to community organizations sponsoring healthcare activities.
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211 Hudsson Valley / ADK
NY 11793
Offers community health education and workshops related to patient safety and advocacy. Call for more information.
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211 Hudsson Valley / ADK