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Acts as a clearinghouse and referral service for information on rare diseases. Maintains a comprehensive rare disease database, which provides families with information on over 1,100 rare disorders. Its networking program links families with other families who are afflicted with similar disorders. Accumulates and disseminates information about orphan drugs and devices, making known their availability. Advocates the needs of people with rare disorders. Provides disease specific medical reports written in lay language. Also offers a Medication Assistance Program for specific drugs and a medical equipment exchange program. Publishes Orphan Disease Update and Resource Guide . Call for more information.

211 Hudsson Valley / ADK

Offers multiple canine-assisted activities, utilizing certified therapy dogs who engage with participants in one-on-one experiences including elements found in canine sports. Participants include a large variety of individuals and groups of children and adults with and without special needs.

211 Hudsson Valley / ADK

Empowers families and informs and involves professionals and other individuals interested in healthy development and educational rights of children. SPAN's foremost commitment is to children with the greatest need due to disability, discrimination, and other special circumstances. Region 1 parent centers are located in: Niantic, Connecticut, Augusta, Maine, Sanford, Maine, Boston, Massachusetts, Concord, New Hampshire, Newark, New Jersey, Rochester, New York, New York City, New York, and Williston, Vermont. Call for more information.

211 Hudsson Valley / ADK

Offers a scheduled proactive experience for children with developmental disabilities ages 7 and up and adults who live with their family in Suffolk and Nassau County. Respite is available seven days a week for two individuals at a time.

211 Hudsson Valley / ADK

Offers a team approach (nurses, social workers, therapists and nutritionists) to provide patient/family centered asthma education and manage asthma care at home. Services include medication management, environmental and lifestyle assessment, emergency management and health monitoring through a telehealth program. Works collaboratively with patient's physician to follow treatment plans and manage asthma effectively. Communicates with school health staff and educators as needed to support children attending school.

211 Hudsson Valley / ADK

Offers a fully inclusive program that offers campers with special needs an opportunity to participate in all activities at Hofstra Summer Camp with their peers. For campers entering 2-5 grade, morning will be in a specialty program of choice and the afternoon will be spent in recreation activities with a peer group of 8-10 campers of the same grade and gender. For campers entering 6-10 grade, mornings will be spent in recreation activities with a peer group of 8-10 campers of the same grade and the afternoon will be spent in a specialty program of choice. Recreational activities are fully inclusive and provide campers with special needs the opportunity to engage and interact with their peers while participating in recreational sports and activities, outdoor/ indoor games, lunch and swim. The REACH Program provides a safe and positive environment for campers with disabilities to participate in Specialty Camps/Learning Institute activities with their peers. In this inclusion model, they enjoy playing games, completing projects and other peer interactions. Campers in the REACH program may receive visual supports and/or modifications when necessary, under the supervision of the REACH director. Campers in the REACH program may also receive 1:1 support from a capable, hard- working volunteer high school student to help them navigate the camp schedule.

211 Hudsson Valley / ADK

Provides recreational activities for children and young adults with a disability who require minimal supervision. Referral required.

211 Hudsson Valley / ADK

Provides evaluations and therapies for children birth through age five in their homes or in a preschool/daycare facility setting. Offers services in Arabic, Chinese, Creole, Hindi, Portuguese, Spanish and Urdu. Please call for an appointment.

211 Hudsson Valley / ADK

Provides referrals to the appropriate school district's Committee on Preschool Special Education (CPSE) for evaluation to determine the needs of preschoolers with special needs. Offers information regarding services that may be available to children with disabilities who are age 3-5.

Finger Lakes Region 211

Offers many support and peer groups for individuals with disabilities including social and recreational gatherings. The groups are facilitated by individuals. Call for specific information. Groups are available for youth and adults.

Finger Lakes Region 211

Provides information and referral services for health and related topics to families of children, from birth to 21 years of age who have, or are suspected of having a serious or chronic healthcare condition.

Finger Lakes Region 211

Provides referrals to the appropriate school districts Committee on Preschool Special Education (CPSE) for evaluation to determine the needs of preschoolers with special needs. Offers information regarding services that may be available to children with disabilities who are age 3-5.

Finger Lakes Region 211

Provides information and referral and advocacy services for health and related topics to families of children, from birth to 21 years of age who have, or are suspected of having a serious or chronic healthcare condition.

Finger Lakes Region 211

Provides referrals to the appropriate school districts Committee on Preschool Special Education (CPSE) for evaluation to determine the needs of preschoolers with special needs. Offers information regarding services that may be available to children with disabilities who are age 3-5.

Finger Lakes Region 211

Provides referrals to the appropriate school district's Committee on Preschool Special Education (CPSE) for evaluation to determine the needs of preschoolers with special needs. Offers information regarding services that may be available to children with disabilities who are age 3-5.

Finger Lakes Region 211

Offers many support and peer groups for individuals with disabilities including social and recreational gatherings. The groups are facilitated by individuals. Call for specific information. Groups are available for youth and adults.

Finger Lakes Region 211

Provides referrals to the appropriate school districts Committee on Preschool Special Education (CPSE) for evaluation to determine the needs of preschoolers with special needs. Offers information regarding services that may be available to children with disabilities who are age 3-5.

Finger Lakes Region 211

Provides recreation respite services for families with developmentally disabled children ages 21 and under two Saturdays per month.

211 Hudsson Valley / ADK

Provides a range of specialized assessments and evaluations of developmental, learning, neurologic and psychiatric issues in children, adolescents, and young adults. Serves any child ages preschool through young adult who is struggling academically and/or experiencing emotional or behavioral problems related to a neuropsychological deficit. Parent and professional education workshops are offered by North Shore Child and Family Guidance Center staff who have expertise in child development and neuropsychology. Offers school consultation to help educators work with children with neuropsychological deficits more effectively.

211 Hudsson Valley / ADK

Provides short-term skilled care and support services at home for patients with disabilities and complex medical conditions from newborn to 44 years of age. Offers a family-centered, team approach to caregiving with the goal of improving patients' independence and quality of life. Treats patients with a wide spectrum of health conditions including Cerebral Palsy, HIV/AIDS, seizures, Failure to Thrive, Hydrocephalus, Diabetes and Asthma. Offers physical, occupational, speech and respiratory therapy, specialized pediatric nursing, private duty nursing, home health and personal care aides, skilled nursing visits, palliative care, medical equipment and supplies.

211 Hudsson Valley / ADK

Offers monthly 4 hour respite for children with disabilities and their siblings enrolled in program. Parents drop off their children, who are cared for by Director of LITLC, students from Lynbrook High School, and other communities. Program includes dinner, crafts, music, and playtime.

211 Hudsson Valley / ADK

Provides early intervention for children birth to five, including speech/language therapy, physical and occupational therapy, special education (self-contained and integrated classes), adapted physical education, computer education, play therapy and family counseling. Also offers a nursery school, Pre-K, day care and a special program for children with autism spectrum disorders. Call for more information.

211 Hudsson Valley / ADK

Specializes in working with children who have a brother or sister with special needs. Adult volunteer mentors give these children special one-on-one attention in a one-to-one, professionally supported relationship, monitored by dedicated case manager. Volunteers are screened and trained. Also match the special needs children with volunteers whenever appropriate.

211 Hudsson Valley / ADK

Provides families, educators, early interventionists, medical professionals, employers, and the community at large with resources to support individuals with disabilities, enabling them to become active members of their communities and meet their full potential in all aspects of life. The CCI provides multi-faceted assistance and enrichment through a variety of resources, services, events, programs, seminars, and workshops. Call for more detailed information.

211 Hudsson Valley / ADK

Offers a wide range of specialized services, home and community based, to children from birth to age 21. Services include special education, ABA (applied behavior analysis), Discrete Trial Instruction, speech, occupational and physical therapy, psychology and social work and Parent Education and Counseling.

211 Hudsson Valley / ADK